After a long journey I have finally found some great resources for parents of special needs children. My son has Mitochondrial Complex I disease, as well as a Co-enzyme Q10 deficiency and finding grants and good informative information has not been so easy.
These are several websites that have been great. Some have grants for medical equipment, wheel chair ramps, even assistance with the cost of diapers. This list is not long and some are state specific and others are not. As I find new sites I will gladly share them.
http://www.weightedblanket.net/
http://parentingspecialneeds.org/
http://www.starlight.org/
http://www.crdnetwork.org/
http://www.globalgenesproject.org/
http://fragilekids.org/
http://kiddosclubhousefoundation.org/
http://www.fodac.org/
http://www.angelflight.com/
http://dare-to-hope.org/
http://www.umdf.org/site/c.otJVJ7MMIqE/b.5472191/k.BDB0/Home.htm
